NC-APVI Board:
I have two children, Micaela, 11, who is typical and Paige, 6,
has bilateral Optic Nerve Hypoplasia (ONH) and Celiac Disease.
Paige is full o f energy and has a wonderful sense of humor and
is so eager to learn. For more information visit
www.onesmallvoicefoundation.org and www.celiac.org
Tony Sizemore, Vice President, Parent
My children Olivia, 4 and Evan, 2 are both affected by
Leber's Congenital Amaurosis (LCA). They are both full
of life and do not let anything stand in their way. They
are inquisitve, happy and determined kids!
Vanessa Edwards, Secretary, Parent
Colleen Austin, Board Member, Parent
Sarah Winslow, Board Member, Parent
Christy King, Board Member, Parent
Dana Fox, Board Member, Professional
Sandy Bryant, Board Member, Professional
William Tubilleja, Board Member, Professional
Jane Barabash, Board Member, Professional
Dr. Laura Enyedi, Opthamologist, Medical Advisor